We will continue our fight
to find a cure for
BATTEN DISEASE !!!
or mail donations to:
PO Box 924, Newtown, PA 18940
Contact Us
Drew Ferrandino
February 1, 2002 - September 30, 2014
God saw you were getting tired, And a cure was not to be. So he put his arms around you and whispered, “Come to me”.
With tearful eyes we watched you, And saw you pass away. Although we loved you dearly, We could not make you stay.
A golden heart stopped beating, Hard working hands at rest. God broke our hearts to prove to us He only takes the best.
#flyhighdrew
Amazon will donate
a portion of your purchase to
Drew’s Hope!
National Organization for Rare Disorders (NORD)
May 19, 2015
National Building Museum, Washington, DC
Tony was honored with a Portrait of Courage Award!
5th Annual Full House of Hope
Casino Night
Saturday, February 1, 2020
Another incredible evening
surrounded by family and friends
to remember and celebrate
Drew on his 18th Birthday!
We raised over $29K!!!
Thank you to everyone who attended, donated and sponsored! We could not continue this without your support!
We are honored to be one of the beneficiaries of
Villa Joseph Marie’s
Hope A Thon
April 16, 2021
The girls have already raised over $20K from fundraising opportunities including Jules Pizza, Playa Bowl, Nothing Bundt Cakes & Chipotle
Our Mission
Drew's Hope Research Foundation is a non profit foundation that was established in honor of Drew Ferrandino. Batten Disease is considered an orphan disease with very little public funding available for research. Drew's Hope is committed to raising funds to support research and creating awareness about Batten Disease. With appropriate funding we can further research to provide a treatment and/or cure for this terrible disease. We are a registered 501(c)3. All donations are tax deductible according to the rules of the IRS.