We will continue our fight
to find a cure for
BATTEN DISEASE !!!
or mail donations to:
PO Box 924, Newtown, PA 18940
Contact Us
Drew Ferrandino
February 1, 2002 - September 30, 2014
God saw you were getting tired, And a cure was not to be. So he put his arms around you and whispered, “Come to me”.
With tearful eyes we watched you, And saw you pass away. Although we loved you dearly, We could not make you stay.
A golden heart stopped beating, Hard working hands at rest. God broke our hearts to prove to us He only takes the best.
#flyhighdrew
Amazon will donate
a portion of your purchase to
Drew’s Hope!
National Organization for Rare Disorders (NORD)
May 19, 2015
National Building Museum, Washington, DC
Tony was honored with a Portrait of Courage Award!
5th Annual Full House of Hope
Casino Night
SAVE THE DATE
Saturday, February 1, 2020
Join us to celebrate Drew’s 18th Birthday
and raise money for
Batten Disease Research!
Northampton Valley Country Club
A huge THANK YOU to
Rotary Club of Shady Brook
12th Annual Charity Golf Outing
for raising
$12,000
Thank you for an incredible event!
October 24, 2018
Our Mission
Drew's Hope Research Foundation is a non profit foundation that was established in honor of Drew Ferrandino. Batten Disease is considered an orphan disease with very little public funding available for research. Drew's Hope is committed to raising funds to support research and creating awareness about Batten Disease. With appropriate funding we can further research to provide a treatment and/or cure for this terrible disease. We are a registered 501(c)3. All donations are tax deductible according to the rules of the IRS.