We will continue our fight

to find a cure for

BATTEN DISEASE !!!






or mail donations to:  

PO Box 924, Newtown, PA  18940    


Contact Us      tonykatie@comcast.net

 
 
 
 
 

Drew  Ferrandino

February 1, 2002 - September 30, 2014


God saw you were getting tired, And a cure was not to be. So he put his arms around you and whispered, “Come to me”.


With tearful eyes we watched you, And saw you pass away. Although we loved you dearly, We could not make you stay.


A golden heart stopped beating, Hard working hands at rest. God broke our hearts to prove to us He only takes the best.


#flyhighdrew





Amazon will donate

a portion of your purchase to

Drew’s Hope!


Click here to add Drew’s Hope to your Amazon Account

                           


National Organization for Rare Disorders (NORD)

May 19, 2015

National Building Museum, Washington, DC

Tony was honored with a Portrait of Courage Award!!!

 
           

Full House of Hope

Casino Night


Saturday, February 4, 2017


Another incredible evening

surrounded by family & friends!

We raised over $22K!!!


Save the Date

February 3, 2018

 

Hoops for Hope 2017











Thanks to all the players and their families, we raised $1,763 !!!


Special thanks to Max Herlan for coordinating this event!!!