OUR MISSION
Drew’s Hope Research Foundation is a non-profit foundation established in 2007 in honor of Drew Ferrandino. Drew was diagnosed at the age of 5 with Batten Disease (CLN2), a rare degenerative neurologic disease for which there is no cure and always fatal. Drew went from a child who could run, jump and play to a child needing constant medical care. Drew passed away at the age of 12 on September 30, 2014. We continue our fight to find a cure for this devastating disease in his memory.

CASINO NIGHT 2025

ANOTHER FABULOUS EVENING SURROUNDED BY FAMILY AND FRIENDS RAISING OVER $25K! THANK YOU TO EVERYONE WHO SUPPORTED OUR EFFORTS! ALL PROCEEDS BENEFIT BATTEN DISEASE RESEARCH IN DREW'S MEMORY 💙 SAVE THE DATE FEB 7, 2026

Help us continue our fight to find a cure for this devastating disease by donating today!

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FUNDRAISING

In Loving Memory of Sherri Jokic
Sherri took great care of Drew and helped us make each day special! We received $2,676 in donations ❤️
Have a Heart Foundation
Thank you for choosing Drew's Hope as the January 2023 recipient of the monthly $1,000 donation to local community organizations!
Villa Joe Hope A Thon 4/16/21
What an amazing day! The girls at Villa Joe raised over $95K for Drew's Hope and Bringing Hope Home. We are beyond proud and honored to have been a part of this event!
Rotary Club of Shadybrook 10/24/2018
Thank you for raising $12,000 in support of Drew's Hope at your 12th Annual Charity Golf Outing! Your efforts and support are greatly appreciated!
Hoops for Hope 2017
Thanks to all the players who raised $1,763! Special thanks to Max Herlan for coordinating this event!
Newtown Elementary 6th Grade Class of 2016
Raised $1,611.36 with their penny challenge! The money was used to purchase a memorial tree and other items for students with special needs at NES. Thank you!!!

RESEARCH INITIATIVES

FUNDED/CO-FUNDED PROJECTS
2025 Research Grant 2024 Scientific Officer / Research 2023 Translational Research / Scientific Officer / Grant 2022 Translational Research / Scientific Officer / Grant 2021 Newborn Screening/Screen Plus2020 BDSRA Research Grant2019 Batrakova Novel Nanformalation 2018 Univ College of London, Biomarkers for CLN2 disease treatment and severity2018 Rutgers Blood based biomarker discovery for CLN22017 Dearborn Wash Univ St. Louis CBD for treatment of intractable seizures2017 Whiting Univ Missouri, sustained TPP1 for delivery/treatment of CLN22015 Rutgers IV Enzyme replacement2013 UNC Gene Therapy using AAV-9
We continue to work closely with other family foundations and the BDSRA to fund research and advocate for new treatments and a cure.
BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action.

CONTACT US TONYKATIE1@ME.COM(215) 431-4373
36 ATKINSON LANENEWTOWN, PA 18940
Drew's Hope Research Foundation is a registered 501(c)3 non-profit organization. All donations are tax deductible according to the rules of the IRS.