OUR MISSION
Drew’s Hope Research Foundation is a non-profit foundation established in 2007 in honor of Drew Ferrandino. Drew was diagnosed at the age of 5 with Batten Disease (CLN2), a rare degenerative neurologic disease for which there is no cure and always fatal. Drew went from a child who could run, jump and play to a child needing constant medical care. Drew passed away at the age of 12 on September 30, 2014. We continue our fight to find a cure for this devastating disease in his memory.

CASINO NIGHT 2023

What a fabulous evening surrounded by family, friends, industry partners, Batten families and the BDSRA! We are excited to announce that we raised over $32k and ALL proceeds will benefit Batten Disease research! We cannot thank everyone enough for their generosity and support as we continue our efforts to fund a cure in Drew’s memory 💙
Thank you to our sponsor

Help us continue our fight to find a cure for this devastating disease by donating today!

Venmo - @DrewsHope Zelle - Drew's Hope Research Foundation PAYPAL - link below

FUNDRAISING

Have a Heart Foundation
Thank you for choosing Drew's Hope as the January 2023 recipient of the monthly $1,000 donation to local community organizations ❤️
Villa Joe Hope A Thon 4/16/21
What an amazing day! The girls at Villa Joe raised over $95K for Drew's Hope and Bringing Hope Home. We are beyond proud and honored to have been a part of this event!
Rotary Club of Shadybrook 10/24/2018
Thank you for raising $12,000 in support of Drew's Hope at your 12th Annual Charity Golf Outing! Your efforts and support are greatly appreciated!
Hoops for Hope 2017
Thanks to all the players who raised $1,763! Special thanks to Max Herlan for coordinating this event!
Newtown Elementary 6th Grade Class of 2016
Raised $1,611.36 with their penny challenge! The money was used to purchase a memorial tree and other items for students with special needs at NES. Thank you!!!

RESEARCH INITIATIVES

FUNDED/CO-FUNDED PROJECTS
2022 Translational Research / Scientific Officer / Grant 2021 Newborn Screening/Screen Plus2020 BDSRA Research Grant2019 Batrakova Novel Nanformalation 2018 Univ College of London, Biomarkers for CLN2 disease treatment and severity2018 Rutgers Blood based biomarker discovery for CLN22017 Dearborn Wash Univ St. Louis CBD for treatment of intractable seizures2017 Whiting Univ Missouri, sustained TPP1 for delivery/treatment of CLN22015 Rutgers IV Enzyme replacement2013 UNC Gene Therapy using AAV-9

BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action.

CONTACT US TONYKATIE1@ME.COM(215) 431-4373
PO BOX 924NEWTOWN, PA 18940
Drew's Hope Research Foundation is a registered 501(c)3 non-profit organization. All donations are tax deductible according to the rules of the IRS.